CCSVI / LILELY LINKED TO MY MS

Posted on Feb 15, 2012 by Ward

I was diagnosed with PPMS IN 2008.
44 Years of age.

CCSVI proceedure done Feb 2011.


I had CCSVI tests done in Vancouver which showed that I did indeed have major restrictions in my Jugular and Azygos viens.

This was encouraging in that it was perhaps a reason why I have MS as well as a possible fix for some of my problems.

I went to the US and had the proceedure preformed.
They found further restrictions in other viens also.

The proceedure was not near a big a deal as I had scared myself into imagining, I have been roughed up and had more tramatic experiences at the dentists.

Unfortuneatly I did not recieve any positive results following the proceedure.

3 months following I had some retesting done here in Vancouver to view what my viens looked like.

My viens had returned to ther original restricted state,
they likely closed up right after the proceedure was done, a possible reason why I did not get a positive result.

It would appear I will require stents to keep my viens open.

As stent use is somewhat contraversial , I am in a wait and see mode as to how this CCSVI saga unfolds within the medical community before attemting proceedure again.

I have spoke with other patients who have had this proceedure who had fantastc results, from just about unable to walk to being able to run or jog just as they could prior to having MS.

Come on Canada lets get going!

Keep your spirits up fellow MS'rs.